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Data linkage in practice: a PhD researcher’s account

eCRUSADers has published a detailed researcher experience post from our TRACC Clinical Research Fellow Tamsin Nash, describing the process of building a linked dataset for her PhD on socioeconomic and ethnic disparities in cancer care quality. The cohort comprises around 500,000 patients diagnosed with cancer in Scotland between 2009 and 2024, drawn from SMR00, SMR01, […]

Mental health after young-onset cancer

A new population-based study led by our PhD student, Glasgow-based neurologist Emanuela Molinari has found that people who survive cancer diagnosed before the age of 40 face a sustained higher risk of mental health problems for many years after treatment. Published in Psycho-Oncology, the study used linked NHS records from the Lothian region of Scotland […]

How safe is pregnancy after breast cancer?

This Data Linkage study exploits historically strong maternity and cancer registration data in Scotland to produce more evidence to help women in their decision making on pregnancy after treatment for early breast cancer.  The impact of childbirth on survival after breast cancer remains controversial. National cancer and birth data were used to analyse an unbiased […]

Standards for Real World Evidence Studies

We believe that independance and transparency are a central requirement for the valid generation of Real World Evidence. This special issue of Value in Health highlights some of the issues. https://www.valueinhealthjournal.com/issue/S1098301520X00118

Creation of the first national linked colorectal cancer dataset in Scotland

Prospects for future research and a reflection on lessons learned: The Bowel Cancer Intelligence UK Hub are working with Public Health Scotland and the University of Edinburgh to make Health Data available and research ready for the colorectal cancer research community. This webinar summarises the project and future opportunities. This introduces the paper sumarising the […]

Lung cancer admission patterns during the pandemic

Data from a single-center study in Scotland suggested that there were more patients with lung cancer admitted acutely with cancer, non-COVID-19-related illness during the COVID-19 pandemic. “Early and late lockdown were characterized by a reduction in self-presentation and longer resulting admission suggesting that patients were admitted with more complex pathology and consequently had longer admission,” […]

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